Patriots Nation

My blog title has nothing to do with anything other than Tom Brady being freed and that the Patriots won the season opener against the Steelers. We should celebrate that!

However I just had a conversation with Stephen about the NFL “donating” proceeds from merchandise sold in Pink October to the American Cancer Society but it is actually very little money out of their coffers and none of it is for research to find a cure. Aren’t’ we all “aware” enough?image I just read the most obnoxious article about Joan Lunden in People about how she is “cured” and beat cancer’s ass and would now do everything to make sure she doesn’t get it again. She is clueless–she has no control over her cells mutations and I was “cured” for 12 years ( I would never have used that terminology because my doctor told me I wasn’t cured unless I died of something else). My cancer did not recur because I didn’t do enough to make sure it didn’t come back or try hard enough. I have had 12 years to ponder on that one. Really on a roll today.image

I am also celebrating getting through this week without throwing up since Monday. Mission Cheezit is working! Colleen also gave me two boxes of oyster crackers to add to my growing stash. The only downside is all the salt. Cancer killed my right kidney which no longer works and is never going to come back to life. The result of that is high blood pressure for which I take daily medication. It occurred to me recently that no one cares about my high blood pressure management or my teeth or any other side medical problem—-because I won’t likely live long enough for it to matter. High Blood Pressure–who cares? We aren’t worried about how your heart will be in 20 years so you are good to go. Screw em! I had two hours of dental work this morning to replace two crowns and re-bond my front teeth which is totally cosmetic. I also highlighted my chemo thinning hair. I am not going to give in to that “loser” mentality nor should anybody else. I want to leave a good-looking corpse, hence the blog photo from 11 years ago when I had lots of estrogen pumping through me. Moving on. image

Last weekend we had no plans. It turned out fantastic. Friday I lolled around the house which I am especially good at. Saturday we headed to Newport for an afternoon on the wharf –window shopping, strolling, people watching, and then on to Tim Blanket’s favorite spot–the Adirondack chairs on the lawn at Castle Hill for gimlets followed by dinner with clam chowder. It never gets old!

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We drove home with the top down and seat warmers on! Sunday, Kelsey and her man came for a cookout followed by the surprise appearance of Brian and Elizabeth for a fire pit. Monday morning brought a lot of throwing up but dammit, I rallied, and we went boating in Westport with Bill and Carla and more chowder at Back Eddy’s. Why, for the mother of god does summer ever have to end?

Work week rolled out with plenty of heat and the promise of more to come. Haven’t thrown up since Monday after I conceded to give up coffee–it was killing my stomach and I don’t want to take more drugs than I already am (not really). Had a decent appointment at Dana Farber and scheduled my next round of Pet scans in early October to see if the chemo is still working, got lost yet again on the Alice in Wonderland elevators to the parking garage, checked out the Halloween display in the gift shop (WHAT?) The coconuts are fine, going about the business of settling in for the Fall.image

My song choice: Mostly because I love Green Day and hate September generally.

“Wake Me Up When September Ends”

Summer has come and passed
The innocent can never last
Wake me up when September ends

Like my father’s come to pass
Seven years has gone so fast
Wake me up when September ends

Here comes the rain again
Falling from the stars
Drenched in my pain again
Becoming who we are

As my memory rests
But never forgets what I lost
Wake me up when September ends

Summer has come and passed
The innocent can never last
Wake me up when September ends

Ring out the bells again
Like we did when spring began
Wake me up when September ends

Here comes the rain again
Falling from the stars
Drenched in my pain again
Becoming who we are

As my memory rests
But never forgets what I lost
Wake me up when September ends

Summer has come and passed
The innocent can never last
Wake me up when September ends

Final thought:

“Friends show their love in times of trouble, not in happiness.” -Euripedes

Love,

Barbwire xoxo

 

7 comments

  1. I think you should do the good and the bad- dye your hair, get your nails painted, etc., AND drink copious amounts of wine, smoke cigarettes, eat devil dogs with the Cheez-its .

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  2. You are so right about how the medical world treats you when you have cancer. Nothing else in your body matters. Our across-the-street-neighbor, who battled lymphoma for 2 years and had a successful bone marrow transplant last year, died a month ago from a massive heart attack. Three clogged arteries that nobody knew about because they only concentrated on her cancer. It’s so wrong. I hope you are taking care of your whole self!
    As for Tom Brady, I just won’t go there. 😜

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  3. Glad you have had a reprieve from the nausea. Also try finding no salt or reduced salt crackers to settle the tummy. I am glad you got down to Castle Hill, also my favorite place to go sit! I think Elizabeth was going there for her birthday yesterday.

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  4. Hi Barb,

    Enjoyed your recent addition to your blog. You are one spirited female !! I’m sitting here tonight in my flannel pj’s. Alas,I’m a lover of summer as well. I recently was treated again for breast cancer at Dana. I, like you, was “cured” for 14 years. Ahh, would that a positive attitude coupled with a resolution not to be defeated by cancer was enough to set cancer patients free. Take care 🙏 Laura

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  5. I threw up in my mouth as I read Joan Lunden’s story in People. Not to bash a fellow member of the pink ribbon club, but I too am dismayed by that attitude, mostly purported by celebs, that if they fight hard enough they’ll “beat” cancer. Enough, already. If showing up for treatment and enduring endless needle sticks and port flushes were enough to “beat” cancer, the word “metastatic” would not be so common in the blogosphere. Great post. I love your sassy self!

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